Erfahrungen und Erwartungen von Angehörigen von Menschen mit Migrationshintergrund mit Gedächtnisproblemen oder Demenz in der Hausarztpraxis: Eine Interviewstudie
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Philipps-Universität Marburg
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Abstract
Background: In Germany, there is an increasing number of people with dementia and a migration background, who are often cared for by relatives at home. The needs of migrant family caregivers for primary care physicians are unclear and the experiences and expectations of this population group in Germany are not sufficiently studied.
Research question: How do family caregivers of people with mild cognitive impairment or dementia who have a migration background experience primary care in Germany? What expectations do they have of family physicians?
Methods: 18 family caregivers with a non-German-speaking migrant background were recruited via General practices or support organizations who care for a person with mild cognitive impairment or dementia at home. Semistructured guided interviews (3 face-to-face, 15 by telephone), were conducted. Interviews were recorded, transcribed verbatim, and analyzed thematically using MAXQDA software.
Results: Five main themes were identified. (1) family doctors as coordination centers (2) trust (3) initiative (4) barriers to counseling (5) burden.
Family physicians are seen as people of trust and medical coordination centers who are seen as the first point of contact. There are barriers for family caregivers regarding medical consultation, where family physicians can be supportive. Family caregivers sometimes criticize insufficient information and a lack of recognition of their role as informal caregivers. A supportive and culturally sensitive attitude on the part of family doctors is appreciated. Family caregivers feel obliged to show initiative themselves in order to receive appropriate dementia care. It is often expected that more initiative comes from family doctors. Respondents report high caregiving burdens. Home care is preferred, but also seen as having no alternative, for example because there is a lack of cultural and dementia-specific services.
Discussion: Family doctors play a central role for the surveyed family caregivers. The respondents particularly value trusting care that is proactive and takes into account the barriers and burdens of the family caregivers. They expect information, consideration, helpfulness and holistic care. Culturally sensitive support as well as patient-centered medicine is needed. The wide range of migration backgrounds as well as dementia types in this study may have been limiting, but were equally beneficial due to desired heterogeneity. Further studies of this complex care setting are required.
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Dates
Created: 2024Issued: 2024-09-02Updated: 2024-09-02
Faculty
Medizin
Publisher
Philipps-Universität Marburg
Language
ger
Data types
DoctoralThesis
Keywords
ErfahrungenexpectationsErwartungencaregiving relativesQualitative ForschungMigrationshintergrundDemenzexperiencesQualitative researchmigration backgroundPflegende Angehörige
DFG-subjects
family caregiverHealthcaremigrationDementiaprimary carePrimärversorgung
DDC-Numbers
610
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Shan, Cheng Wieli: Erfahrungen und Erwartungen von Angehörigen von Menschen mit Migrationshintergrund mit Gedächtnisproblemen oder Demenz in der Hausarztpraxis: Eine Interviewstudie. : Philipps-Universität Marburg 2024-09-02. DOI: https://doi.org/10.17192/z2024.0308.
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This item has been published with the following license: In Copyright