Präferenzen für die Versorgung am Lebensende : Eine Querschnittsstudie unter Menschen mit Parkinson-Krankheit zum gewünschten Versorgungs- und Sterbeort
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Abstract
Background: Parkinson's disease (PD), as a neurodegenerative disease, often requires palliative care in later stages. A large proportion of these patients die in hospital. While most of the general population wishes to be cared for and die at home, to date there is little information on the specific wishes regarding the preferred place of death (pPOD) of PD patients. There is currently no research data on the end-of-life wishes of PD patients regarding their preferred place of care (pPOC). The aim of this study is to investigate the pPOC and pPOD of PD patients, to identify sociodemographic and disease-related factors influencing this decision and to derive clinical implications.
Methods: A unicentre cross-sectional study was conducted to explore end-of-life wishes in hospitalised PD patients. A descriptive analysis of the cohort characteristics was carried out. Subsequently, univariable binomial logistic regression analyses were used to identify independent predictors for the three dependent variables pPOC at home, pPOD at home and pPOD not being important.
Results: A total of 94 PD patients were included in the analysis during the observation period. Most patients chose their pPOC and pPOD in their own home, although one-third also indicated that their pPOD was not important to them. pPOC at home was positively associated with the pPOD at home, as well as with marriage or partnership, independent living, previous discussions with the partner about end-of-life wishes and living in a two-person household. It was negatively associated with the pPOD in the nursing home and the pPOD not important. pPOD at home was positively associated with the pPOC at home and negatively associated with the pPOC in a nursing home and the duration of PD. A not important pPOD was positively associated with a pPOC not considered important and Hoehn and Yahr stage I. There was a negative association with religious affiliation, the Charlson Comorbidity Index and the pPOC at home.
Conclusion: The majority of PD patients prefers the pPOC and pPOD to be at home, analogous to the general population and other chronically ill patients. However, the variations in the responses indicate that the pPOC and pPOD are two different concepts that should be discussed individually. The influential factors identified provide initial insights into decision making for end-of-life wishes in PD patients. Further research with larger collectives and in other regions is needed to confirm these findings and determine additional influencing factors. The pPOD is not important to one-third of patients, which may indicate that the location of end-of-life care is not the only relevant factor for good quality end-of-life care. Studies should be connected here to identify additional factors that are significant for good quality end-of-life care for PD patients.
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Issued: 2026-02-02
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Has part: Factors Associated with Preferred Place of Care and Death in Patients with Parkinson's Disease: A Cross-Sectional Study, DOI: 10.3233/JPD-230311
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FB20:Medizin
Language
de
Keywords
ParkinsonVersorgungsortSterbeortWünsche am Lebensende
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2.23-07 - Klinische Neurologie; Neurochirurgie und Neuroradiologie
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Feldmann, Sarah-Leonie: Präferenzen für die Versorgung am Lebensende : Eine Querschnittsstudie unter Menschen mit Parkinson-Krankheit zum gewünschten Versorgungs- und Sterbeort. : 2026-02-02.
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Except where otherwised noted, this item's license is described as Attribution 4.0 International